NHS England Patient Demo Mortality Dataset

NHS England Patient Demo Mortality Dataset#

Last modified: 14 Nov 2025

UK LLC has created a demographic and mortality dataset dervived from NHS England data.

1. Summary#

The NHS England patient demo mortality dataset, formerly known as the indicator dataset contains the most recent and reliable record for certain key demographic variables sourced from NHS England datasets for each participant. Each project in the TRE is automatically provisioned a file named ‘UKLLC_nhse_patient_demo_mortality_v0000_YYYYMMDD’ (formerly known as ‘CORE_derived_indicator_v0000_YYYYMMDD’).

The dataset includes all NHS England linked participants who have permissions from the LPS selected and approved as part of your project. Sex, ethnicity (ethnic: NHS England ethncity coding system - see values table for coding lookup) and date of birth (dob_year_month: year and month of birth) are obtained from the following five datasets in the order presented (i.e. if the information isn’t available in the Demographics dataset, the GDPPR dataset is then searched etc.):

  1. Demographics.

  2. General Practice Extraction Service (GPES) Data for Pandemic Planning and Research (GDPPR).

  3. HES Admitted Patient Care (HESAPC).

  4. HES Outpatients (HESOP).

  5. HES Accident & Emergency (HESAE).

The following variables are then added:

  • Deceased: from the Mortality dataset

  • Date of death: from the Mortality dataset

  • last_seen_date: last date recorded in any NHS England dataset (patient_service_usage).

The dataset enables researchers to:

  • ascertain whether a participant is alive or dead and, if applicable, see their recorded date of death

  • quickly retrieve basic demographic information such as sex, ethnicity and age (via date of birth)

  • see the date when a participant last used an NHS England service

  • easily filter/group demographic data to be integrated into analytical pipelines.

Dataset Descriptor Dataset-specific Information
Name of Dataset in TRE UKLLC_nhse_patient_demo_mortality
Citation (APA) UK Longitudinal Linkage Collaboration. (2025). UK LLC Managed: NHSE Patient Demo Mortality Dataset. UK Longitudinal Linkage Collaboration (UK LLC). https://doi.org/10.71760/ukllc-dataset-00440-08
Download Citation Citeproc JSON     BibTeX     RIS
Series UK LLC Managed
Owner UK Longitudinal Linkage Collaboration, NHS England
Temporal Coverage Unknown - Unknown
Keywords
Participant Count 250892
Number of variables 8
Number of observations 250892
Specific Restrictions to Data Use None
Build a Data Request https://explore.ukllc.ac.uk/

2. Variables#

Variable Description
cohortkey_e None
sex sex
deceased deceased
reg_date_of_death If deceased, date of death
ethnic ethnicity
dob_year_month date of birth year and month
last_seen_date most recent appearance in nhs data
avail_from_dt None

3. Version History#

Version 4 5 6 7 8
Version Date 01 Nov 2022 17 Dec 2022 13 Dec 2023 01 Aug 2024 07 Aug 2025
Number of Variables 8 8 8 8 8
Number of Observations 194544 194544 207205 250892 250892
DOI 10.71760/ukllc-dataset-00440-04 10.71760/ukllc-dataset-00440-05 10.71760/ukllc-dataset-00440-06 10.71760/ukllc-dataset-00440-07 10.71760/ukllc-dataset-00440-08
Change Log 10.71760/ukllc-dataset-00440-04/activities 10.71760/ukllc-dataset-00440-05/activities 10.71760/ukllc-dataset-00440-06/activities 10.71760/ukllc-dataset-00440-07/activities 10.71760/ukllc-dataset-00440-08/activities

4. Useful Syntax#

Below we will include syntax that may be helpful to other researchers in the UK LLC TRE. For longer scripts, we will include a snippet of the code plus a link to Git where you can find the full scripts.